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Our New Normal: Parenting Our Child With Tourette Syndrome, ADHD, OCD, ODD

 If you missed them, here are some of the successes:

 

  • Nathan is back in regular school, with support, staying a full day and managing his school world successfully almost every day!
  • I understand that Nathan has been self regulating all day long and when he gets home it will almost always fall apart at least for a short time.  I get it and it is ok.
  • Nathan acknowledges and apologizes for all of his verbal or physical threats almost immediately.  He has learned his actions and words can have an impact on others, (me in this case) and he appropriately takes responsibility.
  • Nathan recognizes that events that happen at school need to be resolved and he does resolve most of them before the end of the day.  Again, this is with adult support at school but he is successful at it!
  • Nathan is actively doing his after school must do jobs.  Book bag in its place, contents unpacked, no nagging or reminders required.  That is responsible.
  • Nathan hugs me because he knows it is important to me.  He knows it is how you show love and affection.  He is looking outside himself and to the welfare of others.
  • Nate and I manage an extremely disruptive daily transition and we both know we are loved.

New Normal Mom and Son Neurologically GiftedI would have never predicted that this would be our new normal after school routine or that this new normal would actually feel good!

 

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15 thoughts on “Our New Normal: Parenting Our Child With Tourette Syndrome, ADHD, OCD, ODD”

  1. Wow. You are a wonderful parent. Thank you for explaining it all so well. My 8 year old is like this on a lesser scale. I am so proud of him for holding it together during the day, and trusting me to accept him when it all comes out at night.
    I am trying to teach him that he is not mean. Well done to your lovely boy xx.

    1. Thank you for your kind words Karen! I am really seeing that understanding and acceptance is worth everything. Nate may let it all out with me but I know so well how much it means to him, what I mean to him and the impact it has on his success. I know Nathan feels guilt, too but I reinforce all the growing and hard work he is doing to learn to manage his symptoms better. I point out how far he has come so he knows he is not just a mean kid but a boy with challenges who is moving mountains to manage them and that he should be very proud. Take care. Julie.

  2. So profound. You do get it, and Nate is so very, very fortunate to have a mother like you. You will always be a better mother, and a better person for it.
    My son is now 24 with tourettes’ and OCD, and many of the traits you mention are the same. Let me tell you, as he matured, I could tell that he started to appreciate the secure, patient, and understanding home life we gave him. He now lives 2 hours away, but when he comes home, after living every day self-regulating in the outside world, he still lets “loose”, because he knows he can.
    Didn’t mean for this to be so long! Take care.

    1. Thank you Eileen! I am so glad there are other mom’s like me and we can validate each other. I definitely am a better person because of my son. He is taught me more in his short life that I could have ever imagined! And I am always learning. I am happy to hear you and your son found your way too. Take care! Julie.

  3. So glad I found your blog, helps to not feel so alone. My son is 11, TS, ADD and OCD and he has so many of the same traits on a lesser scale but the anger is so hard to understand for me. It breaks my heart he seems frustrated and mad so much of the time. His tics are off the charts when he arrives home from school, and everything I do gets on his last nerve. Look forward to following your blog . Thank you for sharing

    deAnn

    1. Thank you deAnn. Thank you for sharing. We too, struggle with this. As parents, we get the most uncensored behaviour and it is good to keep this in mind. It is a sign of how much he trusts you to be there. Hope you have seen our next post “Why is My Child Mean?!? Understanding and knowledge helps a ton!

      1. see how my ADD kicks in, poor child got that from me ..lol I did read that article as soon as I got the email notification earlier in the week, and and it was a great article. As soon as I started to read it I realized I had even made a comment on the FB page about it. So glad I found this page, agian thank you for sharing !

  4. I have tears pouring down my face as I relate to this very situation it is as though you wrote about my daughter. Thank you got sharing a piece of your heart. And Nates.

  5. reading this has really given me hope, my son is adhd,odd and disorda of behavior and emotions and my word it has been so exhaustin and it really is parentin them a different way so relieved to hear how you parent him hallelujah i say xxxxx

  6. Julie… What you have written about Nates, sounds like what my son does; It’s just the same, Only difference is, he is 31. I too had tears rolling down my eyes. Our kids need all the support from us, and we need all the patience. Take care Julie.

    1. Thanks Jessy. I know I’m not alone enduring this and that does help. It is exhausting as you well know! Breathe deep often and remember how strong you are and have been. I will as well. Julie

  7. Thanks for sharing your experience. I am pretty much doing that but definitely with your advises can adjust my daily life as well as my son’s. I already sent my husband your article in how to manage ODD behavior. He is stepdad and we need to keep our relationship with nurturing, love and appreciation of God.

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